Chiarians Unite

Paying it forward ... One family at a time!

Did You Know ...

With OVER 300,000 patients in the United States alone* - Chiari is more prevalent than cervical cancer** (the target of inescapable TV advertising) YET the average neurologist, neurosurgeon, and layperson knows little about this disorder and the effects it has on the human body.  It is time for change!

We hope to collect enough information within each state/country to help you facilitate a Chiari and Related Disorders Medical Conference in your area! 

Help us prove the need of Chiarians throughout the world! We need your help! 

Please visit our GET INVOLVED page for more information on our PATIENT REGISTRY

All for one, one for all!

*http://www.conquerchiari.org/awareness/awareness%20education%20sheets.htm

**http://seer.cancer.gov/statfacts/html/cervix.html

CHIARIANS UNITE - United in friendship and support! 

Chiarians Unite is a global online community of Chiarians and medical providers seeking support and information regarding Chiari Malformation and related conditions.

Chiarians Unite exists to help fellow Chiarians, their families, friends, medical professionals, etc., understand the complicated nature of the beast we call Chiari Malformation.  Many related conditions can accompany Chiari Malformation which wreak havoc upon an already delicate body.   

The more you know, the better you can care for yourself or a loved one.

Our current web page count is well over 90 pages of information available on our site (March 2010).  Everything from condition specific information, symptoms, etc. to peer to peer support!  Come join our online global community - No one should ever feel alone!

We will continue our amazing collaboration with several foundations and government entities in order to bring all together to create change for the future of Chiarians world-wide.

Education regarding Chiari and related conditions is key to much needed changes for those afflicted. 

Your kindness and understanding is honored here and we appreciate your continued support of each other.

*Conditions

* CONDITIONS

Chiari Malformation (FKA, Arnold Chiari Malformation)
Syringomyelia
Tethered Spinal Cord
Pseudotumor Cerebri
Pseudotumor-like Cerebri
Intracranial Hypertension
Hereditary Disorder of the Connective Tissue
Ehlers Danlos
Marfans
Sticklers
Slipped Disc in Cervical Area
Slipped Disc in Thoracic Area
Slipped Disc in Lumbar Area
Spina Bifida
Spina Bifida Occulta
Functional Cranial Settling
Craniocervical Instability
Retro Odontoid Pannus
POTS - Postural Orthostatic Tachycardia Syndrome
Scoliosis
Basilar Invagination
Basilar Impression
Other disorder not specified here

MEDICAL EMERGENCY

If you are in the United States and are experiencing a medical emergency, please dial 911 on the nearest telephone to call for emergency medical help.

Members Only Live Chat

 

We were experiencing difficulties viewing the chat room.  They assure us their up and running.  If you have any difficulties, please contact Info@chiariansunite.org. 

Thank you for your patience while we work out the kinks!

Members can click on the button below to ease access into the Live Chat Room.  

http://chiariansunitelivechat.yuku.com/chat/room/id/70/

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